Argentieri's Avengers

​"LEARN TO WRITE YOUR HURTS IN THE SAND, AND TO CARVE YOUR BLESSINGS IN STONE"

Dear Family & Friends,

For most, you have read our annual Argentieri’s Avengers letter for more than 30 years as we prepare for the Annual Great Strides Walk and strive to find a cure for Cystic Fibrosis. Throughout those years, we have shared stories of the pain and suffering our two beautiful daughters, Alexandra (33) and Carley (27) have endured, and yet we have also been able to share the incredible blessings they (we) have received! We continue to remind all of you that were it not for people like you, those blessings would not be possible.

Rather than share the daily routine, hours of treatments, weeks in the hospital they lived in an attempt to stay healthy, I want to focus on our many blessings and the incredible impact your contributions and dedication to our cause has helped make possible. I also wish to share that while we are incredibly blessed, our journey is not yet complete; and we do still implore your assistance.

• Alexandra is 8.5 years post-transplant & continues to be well.  SHE IS 33 YEARS OLD!!!!
• Alexandra & Alex welcomed Brooks Alexander in November 2023. He is yet another miracle & has brought our families incredible happiness!!
• Carley married the love of her life, Michael, on December 29, 2023. She continues to work full-time as a pediatric nurse and is very healthy – her pulmonary functions are now in the 90s.
• The Cystic Fibrosis Foundation (CFF) has four drugs available for people afflicted with CFF – Trikafta which is the drug that transformed Carley’s and thousands of lives for those living with CF.
• The CFF continues research and progress for patients where there is NOT a viable treatment.
• The CFF continues research to identify early rejection for patients who have had lung transplantation.
• The CFF has entered the genetic therapy arena and ARE making progress. This would be a cure!!!
• There are 40,000 people today living with cystic fibrosis – 10,000 more than just a couple years ago due to the advancements made. People are living longer and healthier lives.
• We, as a community, have raised over $1 million towards research and a cure.
• Ashtin (non cf) & her husband, Connor, are expecting our first granddaughter in July.
• Many of what were only dreams have come true – we have three healthy daughters living beautiful lives. THANK YOU ALL FOR THIS INCREDIBLE GIFT!!!

While we celebrate the milestones, we cannot stop until there is a treatment or cure for ALL with CF. TO DO THAT, WE NEED  YOUR CONTINUED HELP! Please consider making a donation, joining our team, or creating a team to help raise funds. Your gift is 100-percent tax deductible! You may donate directly to our team by visiting http://fightcf.cff.org/goto/TeamArgentierisAvengers, venoming me at @Colleen-Argentieri, or you may send a check payable to the CFF to 1615 Heather Heights, Hornell, NY 14843. You may register for the walk on the same site. Thank you for supporting the mission of the CFF and Argentieri's Avengers!

We are deeply grateful,
Colleen & Fran