Our 8 year old daughter Claire has Cystic Fibrosis (CF). Claire is an energetic and happy little girl. Claire takes numerous medications and completes multiple therapies daily to maintain her health. If you meet her, you would never know she has a life shortening disease.
Because of generous donors life yourself the lifesaving research to cure cystic fibrosis continues. Please help us improve the quality and length of life for so many, including our Claire Bear, by any means that you are able.
Below are ways that you can support our team, Claire’s Crusaders:
Prayer: Please keep a cure for Cystic Fibrosis in your prayers.
Golf Outing on Saturday, June 6, 2020 held at the Mayfair Country Club.The event will be a scramble with a shotgun start at 8:00 AM with lunch following immediately after completion of play. The funds raised from the golf outing will be donated to our daughter's Great Strides Team.
Akron Great Strides Walk on Saturday May 9, 2020 at the Akron Zoo. The Great Strides walk is the CF Foundation’s largest and most successful national fund-raising event. Our team name is Claire’s Crusaders. You can view Claire’s home page and donate to the walk at the following location:
You can feel confident knowing that your generous gift is used efficiently and effectively. Over 90% of funds donated to the Cystic Fibrosis Foundation are used for investment in vital CF programs to support research, care and education.
We appreciate your time, support and prayer. Your support helps to give children and adults with CF a better quality of life and hopefully a cure. Thank you for supporting us and this important cause!
Dave, Lisa and Claire Kibler
Here are a few facts about cystic fibrosis:
CF is a genetic disease. There is currently no cure for CF, only treatments to lessen the severity of the symptoms.
The odds of a child being born with CF is 1 in 3,000, however about 1 in 30 people are carriers of the genetic mutation that causes CF. In order for someone to have CF, both parents have to be carriers of the genetic mutation.
CF affects the way salt is processed in the body, this results in thick sticky mucus throughout the body. The two organs most affected by this are the lungs and the pancreas. The mucus in the lungs allows harmful bacteria to colonize in the lungs causing breathing issues. The pancreas cannot produce the enzymes required to digest food due to the mucus and makes it hard for people with CF to gain weight.
In the past 65 years The CF Foundations aggressive research has raised the average lifespan of people with CF from elementary school age to around 40 years of age.
People with CF are not supposed to be around other CF People because they pass bacteria to one another.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.