Dear friends and family, I hope you're staying healthy and warm. If you're like us, you're eagerly awaiting sunnier days and warmer temps! We're also anticipating our 12th Annual Pancake Breakfast to Cure Cystic Fibrosis and walking in our 12th Canton Great Strides for Cystic Fibrosis Most people have heard the term ten-year challenge especially if they use social media or watch the news. Ten years can make a world of difference in many things like our appearance, but ten years can also have a huge impact on the life of someone living with Cystic Fibrosis.
Cystic Fibrosis (CF) is a genetic life-threatening disease affecting mainly the lungs and digestive systems. Two of our three children have Cystic Fibrosis. Ten years ago, I would watch Jack & Allie sit in one place tethered to machines doing airway clearance therapy and breathing treatments for two hours twice a day everyday. Today, medications can be delivered quicker and more efficiently. They even have portable airway clearance vests that allow them to be mobile while on their treatments. Ten years ago, children and young adults in school would spend two to three weeks of their Christmas break and summer vacations inpatient receiving IV antibiotic therapy -they call those clean-outs. Ten years ago, those of working age who have CF would lose their jobs because they would miss too much work because of their disease. Over the last decade things have changed tremendously. There has been great progress in new therapies, new medications-like antibiotics and drugs that actually treat the underlying defect in those born with Cystic Fibrosis. Today Jack and Allie can do their treatments just 45 minutes twice a day.
Ten years ago, we didn't know where we'd be today, but we had HOPE. Because of generous people, businesses and the Cystic Fibrosis Foundation, whose mission is to control and cure Cystic Fibrosis, many people are living with CF rather than dying from CF.
Mark your calendars. We have two events coming up this spring for CF:
Saturday April 27th is the date of our 12th Annual Pancake Breakfast to Cure CF at Central Presbyterian Church (47 2nd St NE Massillon) from 8am-noon. Be sure to join us and tell your family, friends and co-workers!
The Canton Great Strides walk will be Saturday May 4th at McKinley High School, hundreds of people will walk in the Canton Great Strides for Cystic Fibrosis who need a cure.
If you can't join us, but would like to support our efforts for a cure for Jack and Allie, you can mail your tax deductible donation to us at 826 Bittersweet Dr NE Massillon, OH 44646. Checks should be made out to the Cystic Fibrosis Foundation. OR You can pay here through the Great Stides:
Thanks for your support, Heather, Scott, Jack, Allie & Leo Vignos
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.