I could write here more about all the amazing meds, advances, and things the girls are able to do because of them. I'm not. Instead I want to thank all of our amazing family and friends who have helped us every step of the way. It has been so important to us to have the support of our family and friends through our lives- especially the last 7 years. We are successful and the twins are successful because we have YOU!
We don't have CYstic FIbrosis ruling our daily lives, and that is because of all your incredible support!! The girls are able to go to school, play soccer, do gymnastics, golf, playoutside, ride their bikes... If you were able to talk to a parent of a kid with CF from 25 years ago, this was unheard of. Life expectancy was childhood... not the life we are leading. We are so blessed to be able to benefit from the incredible CF advances of the last 25 years and hope the advance keep coming and the disease is not longer a sentence, but something to treat, live with, and thrive in spite of!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.