Okay friends, family, and new faces. It's that time of the year again and i'm so glad to see you here! As you know, or don't know (for you newbies).. I have been living and dealing with CF for all of my life. Born with it, diagnosed at 6 months old.. and fighting ever since. My mother was told i probably wouldn't make it to see 18. I was told a little after that.. probably not 21. BUT NOW, research has come SO far and there has been so much testing and new inventions that have prolonged the life of us suffering from Cystic Fibrosis. TODAY the average life expectancy for someone with CF is 37 years old. It's AMAZING.
THAT is the reason we do this. THAT is the reason we're constantly fundraising and drawing attention, and raising awareness to CF. We need all the help finding new therapies that lead to a cure. CF DOES NOT get any sort of state or national funding like other diseases, so all the money that is made from charity comes straight from the CF community. And we're working DAMN HARD to get what we want. That's why i want YOU. I'd love for your help and contributions to possibly help out myself, and others with CF live a easier, better life. We need a damn cure asap. I can't even begin to tell you how many friends i've lost to this disease, but all i can tell you is that somewhere down the line, i'm next. And i'm not entirely sure i'm ready.
If you can't donate, that is 100,000% OKAY. I know times are tough and this world is out of control. But i would love to see you and your closest friends and family walking with me to show the community some love and support in Cleveland, May 2020.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.