Okay friends, family, and new faces. It's that time of the year again and i'm so glad to see you here! As you know, or don't know (for you newbies).. I have been living and dealing with CF for all of my life. Born with it, diagnosed at 6 months old.. and fighting ever since. My mother was told i probably wouldn't make it to see 18. I was told a little after that.. probably not 21. BUT NOW, research has come SO far and there has been so much testing and new inventions that have prolonged the life of us suffering from Cystic Fibrosis. TODAY the average life expectancy for someone with CF is 37 years old. It's AMAZING.
THAT is the reason we do this. THAT is the reason we're constantly fundraising and drawing attention, and raising awareness to CF. We need all the help finding new therapies that lead to a cure. CF DOES NOT get any sort of state or national funding like other diseases, so all the money that is made from charity comes straight from the CF community. And we're working DAMN HARD to get what we want. That's why i want YOU. I'd love for your help and contributions to possibly help out myself, and others with CF live a easier, better life. We need a damn cure asap. I can't even begin to tell you how many friends i've lost to this disease, but all i can tell you is that somewhere down the line, i'm next. And i'm not entirely sure i'm ready.
If you can't donate, that is 100,000% OKAY. I know times are tough and this world is out of control. But i would love to see you and your closest friends and family walking with me to show the community some love and support in Cleveland, May 2020.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.