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Achievements:

Claire's Crusaders

Event: Akron

| Team Leader:

Team Fundraising Goal: $25,000.00

| Amount Raised: $11,550.00

46%

Our Great Strides Story

Our Team

Name

Achievements

Raised

Claire's Crusaders

Our 10 year old daughter Claire has Cystic Fibrosis (CF). Claire is an energetic and happy little girl. Claire takes numerous medications and completes multiple therapies daily to maintain her health. If you meet her, you would never know she has a life shortening disease.

In 2021 Claire began taking a newly approved CF Medication named Trikafta and wow has it changed her life and greatly improved her health. This new medicaiton is only possible because of generous donors life yourself the lifesaving research to cure cystic fibrosis continues. Please help us improve the quality and length of life for so many, including our Claire Bear, by any means that you are able.

Below are ways that you can support our team, Claire’s Crusaders:

Prayer: Please keep a cure for Cystic Fibrosis in your prayers.
Akron Great Strides Walk on Saturday May 14, 2022 at the Akron Zoo. The Great Strides walk is the CF Foundation’s largest and most successful national fund-raising event. Join our team and or donate to help. Our team name is Claire’s Crusaders.

You can feel confident knowing that your generous gift is used efficiently and effectively. Over 90% of funds donated to the Cystic Fibrosis Foundation are used for investment in vital CF programs to support research, care and education.

We appreciate your time, support and prayer. Your support helps to give children and adults with CF a better quality of life and hopefully a cure. Thank you for supporting us and this important cause!

Sincerely,

Dave, Lisa and Claire Kibler

330-606-5217

Here are a few facts about cystic fibrosis:

CF is a genetic disease. There is currently no cure for CF, only treatments to lessen the severity of the symptoms.
The odds of a child being born with CF is 1 in 3,000, however about 1 in 30 people are carriers of the genetic mutation that causes CF. In order for someone to have CF, both parents have to be carriers of the genetic mutation.
CF affects the way salt is processed in the body, this results in thick sticky mucus throughout the body. The two organs most affected by this are the lungs and the pancreas. The mucus in the lungs allows harmful bacteria to colonize in the lungs causing breathing issues. The pancreas cannot produce the enzymes required to digest food due to the mucus and makes it hard for people with CF to gain weight.
In the past 65 years The CF Foundations aggressive research has raised the average lifespan of people with CF from elementary school age to around 40 years of age.
People with CF are not supposed to be around other CF People because they pass bacteria to one another.

Join Team

Team Roster

Raised

Lisa Kibler

$11,550

Denotes a Team Leader

Achievements

Top Team 10K

Raised the amount of money defined for this milestone

Claire's Crusaders

of Goal

$11,550 Raised

$25,000.00

Team Honor Roll

Pnc Institutional Asset Management

Dave, Lisa & Claire Kibler

$5,000

Dale and Beverly Kibler

$150

Tom Hromyak

$50

Recent Donors

Pnc Institutional Asset Management

Dave, Lisa & Claire Kibler

Dale and Beverly Kibler

Tom Hromyak

Full Donor List

IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:

Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.

Achievements:

Claire's Crusaders

Our Great Strides Story

Our Team

Akron

Claire's Crusaders

Connect With Us

IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

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