My Great Strides Story
My daughter Colleen was diagnosed at the age of 32 after a lifetime of medical problems that either were treated as individual rare issues or blown off as “anxiety induced “ problems. Finally a wonderful Physician from Summa Hospital, an Infectious Disease Doctor, listened to the whole life time of stories and put it all together! Someone finally listened!! We are grateful for that! A lot of damage has already been done to her lungs from the misdiagnosis and the outright neglect of some doctors to actually listen to my daughter’s concerns and do any foyup testing. We are grateful to have a name for this And the name is Cystic Fibrosis. We are here to fight with her to improve her quality of life and find a cure! We are here to fight with all those babies, children, teenagers and adults diagnosed with this disease and to fight along side their families!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.