There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. My CFer is my Niece, and I walk for her.
Skylar is the strongest individual I know. She has been overcoming every obstacle since her first breath in this world. To her they aren’t obstacles at all, they are her life and her story. Skylar fights every day to breathe and just to be. Be a “normal” college student, be a cheerleader, be a woman’s Lacross player, be a daughter, and a sister. Yet she does it every day without complaining. She is continuously catching the world on fire with every passing day. Skylar’s personality is contagious and you can’t help but get caught up in it. She is a hero and a role model to many, but I'm the lucky one that gets to call her my niece and one of my best friends.
“She’s a riser! A get up off the ground, don't run and hider. Pushin' comes a-shovin', Hey She’s a fighter! When darkness comes to town, she is a lighter, a get out aliver of the fire, survivor!”
-Dierks Bentley Riser
Skylar has 2 rare mutations, which makes her ineligible for any of the modulators that are available to most patients with CF. With your donations we can help the doctors and researchers find new drugs to help Skylar and all of those other patients who need a modulator. Will you please rise up with me as we take steps to fight for a cure for this awful disease. Our families and friends who have a CFer need support to find these drugs or better yet a cure. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!