Our 10 year old daughter Claire has Cystic Fibrosis (CF). Claire is an energetic and happy girl. Claire takes numerous medications and completes multiple therapies daily to maintain her health. If you meet her, you would never know she has a life shortening disease.
In 2021 Claire began taking a newly approved CF Medication named Trikafta and wow has it changed her life and greatly improved her health. This new medicaiton is only possible because of generous donors like yourself the lifesaving research to cure cystic fibrosis continues. Please help us improve the quality and length of life for so many, including our Claire Bear, by any means that you are able.
You can feel confident knowing that your generous gift is used efficiently and effectively. Over 90% of funds donated to the Cystic Fibrosis Foundation are used for investment in vital CF programs to support research, care and education.
We appreciate your time, support and prayer. Your support helps to give children and adults with CF a better quality of life and hopefully a cure. Thank you for supporting us and this important cause!
Dave, Lisa and Claire Kibler
Here are a few facts about cystic fibrosis:
- CF is a genetic disease. There is currently no cure for CF, only treatments to lessen the severity of the symptoms.
- The odds of a child being born with CF is 1 in 3,000, however about 1 in 30 people are carriers of the genetic mutation that causes CF. In order for someone to have CF, both parents have to be carriers of the genetic mutation.
- CF affects the way salt is processed in the body, this results in thick sticky mucus throughout the body. The two organs most affected by this are the lungs and the pancreas. The mucus in the lungs allows harmful bacteria to colonize in the lungs causing breathing issues. The pancreas cannot produce the enzymes required to digest food due to the mucus and makes it hard for people with CF to gain weight.
- In the past 65 years The CF Foundations aggressive research has raised the average lifespan of people with CF from elementary school age to around 42 years of age.
- People with CF are not supposed to be around other CF People because they pass bacteria to one another.