Friends & Family,
It's that time again this year, our 7th Annual Great Strides Twinsanity team is formed and we're fundraising again. Thank you to all those who were able to donate and/or Walk with us last year and we're working hard to raise more money this year. Come support us in person at the Cleveland Zoo walk or even more importantly, donate to raise money for our cause.
Bethany and Lucy will turn 7 this summer...7!!! They're already 1/2 way through 1st grade!!!! It has been a great year, life gets to be so much fun as they get older. My favorite memory of the twins this past year has been them playing soccer. They were allowed to play up a few years and play on their sisters U9 soccer team. I have enjoyed every minute watching the three of them playing together, I can't imagine that will happen very often, and I've loved it. The twins were a little lost to start the season, but using their TWIN POWER they've started to understand the game and play well.
They've been doing very well with their disease too, they're taking a drug called Orkambi. It's supposed to help fix the salt protein that causes a lot of the lung issues with CF. Both are responding to this drug very well. Orkambi was developed by the CF foundation in a joint venture with Vertex Pharmaceutical. These ground breaking meds are the reason we help fundraise for the CF Foundation. The have done so much for my daughters!
Overall a great year, and looking forward to the next one coming up!
Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF.