Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
Each year we walk in support of Jakson, who was diagnosed with cystic fibrosis when he was three weeks old. We have been blessed with an amazing helathcare team at Rainbow Babies and Children's Hospital that help us live with and manage this disease. Jackson is a healthy 8 year old, largely due to the dedication of the pulmonologists, nutritionists, social workers, and nurses on his team, along with some incredible medical advancements that have been made to help maintain the health of children and adults like Jackson living with CF.
Although Jackson's body is healthy, he takes several medications daily- along with doing breathing treatments twice daily while hooked to a percussion vest- to maintain his health. Funding for the research and discovery of medications to treat CF is heavily funded by the Cystic Fibrosis Foundation, whose mission is to find a cure for CF- and it is the organization that we raise money for each year when we walk! Jackson was able to start a new medication this past year which could change his life as he grows up, and the Cystic Fibrosis Foundation played a huge role in funding the development. We are proud to raise money for an organization so dedicated to meeting the needs of people living with CF!
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!