This is Benjamin. He is 9yrs old, is in 3rd grade, and is the toughest, bravest, kid that I've have ever known. Everyday, he fights a battle that most adults would never even understand. He has cystic fibrosis, and with a double copy of the most common, yet most deadly mutated gene. In his life, of only 9yrs, Ben has overcome MANY hospital stays, surgeries, procedures, needle sticks, and daily routines of vest treatments and handfuls of medicines to ingest and inhale just to keep his head above water. He even, at age 6, volunteered to be in a trial study for the drug Orkambi, and was the first youngest CF patient to start. He still continues the trial, which means added, frequent trips up to the hospital, on top of his normal check ups every 6wks. With everything he is faced with, left and right, this young man still manages to stay on the Honor Roll at school. His determination, strength, love, and maturity are mind blowing, not forgetting his incredible imagination and humor are just so inspiring! He is a son, a brother, a nephew, a cousin, and a friend with a life expectancy handed to him at birth, of the measly age of 31. We will not stand and allow him to fight alone, we will not stand to let him lose! Please, help us fight with him! Click to donate today! Every $0.99 of each $1 donated goes to the Cystic Fibrosis Foundation for research. You can join our team too! Walk with us! It's a day full of fun and other people fighting for those they love. Thank you from the bottoms of our hearts!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.