There are approximately 30,000 Americans living with cystic fibrosis. My daughter, Alyssa, is one of them. I walk for her. I also have dozens and dozens of friends I've met on this journey who also have CF or have a child with CF. I walk for them.
Our journey with CF began when Alyssa was born. Symptoms of CF emerged while we were still at the hospital, and she was diagnosed at 4 months old. Her first few years were bumpy. We had lung infections, weight issues, and many hospital stays. As she got a little older, and we were able to keep her active and on a solid treatment regime, she did a lot better. We are proud and thankful that she has not had a hospital stay in many years. But this disease is unpredictable, progressive, and while there are some wonderful medications coming out of the research from the Cystic Fibrosis Foundation, there is still no cure. We are hopeful, though. Alyssa and others with this disease have access to so many groundbreaking medical miracles. All of these life lengthening medicines come out of research paid for from the money earned during Great Strides. And so we walk!!!!!
By making a donation, no matter how small, you are joining a growing group of people committed to finding a cure for cystic fibrosis. The Cystic Fibrosis Foundation is an impressive non-profit that puts nearly 90 cents of every dollar raised toward research. Look this up....its pretty impressive as some of the best known non-profits only put half or less than half to research and they are still considered good investments.
I walk so that I can someday be a part of finding better therapies and maybe a cure.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.