We are walking for our sweet friend Nolan Hess!
Our sweet Nolan was diagnosed with Cystic Fibrosis shortly after his birth via his Newborn screen and confirmed with a sweat test.
He is already a fighter, going to Clinic, taking his enzymes, salt and vitamins like a champion. Nolan has a journey ahead of him with obstacles that not everyone will understand but he will take it in "stride" with support from Family and Friends like you!
We will not stop until there is a cure! Our goal for our sweet boy is to live a long, normal and healthy life, and he will! As a family we will help advocate for his best care. And further we will educate everyone around us about Cystic Fibrosis.
There is a reason Nolan is here and there is no coincidence his name means Noble Champion!
Team Nolan Patrol is on a Roll, so here we go!!! ( paw patrol reference because that is what we Hess' live by! )
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.