As many of you know Jordan was diagnosed with Cystic Fibrosis on May 26, 2016. In addition, Jordan has CF related early stage liver disease. While we were thankful to finally know what had been wrong with Jordan it has changed all of our lives forever. It is a daily battle with two hours a treatments a day and 25-30 pills per day. Jordan is on a 5,000 calorie diet per day and we are trying to feed him enough before June so he does not have to get a feeding tube so pray for him that he keeps gaining weight! Jordan has good days and bad days. He is a teenager and the struggles that come along with his age but, to put this diagnoses on top of teens years has been challenging. Most days Jordan is positive and does not let his disease take over his life however, he is frustrated and angry (mostly at Mom for enforcing his treatments) and I cannot blame him. He has been dealt a very tough battle in his life and keeping a positive attitude is a daily struggle. I will not give up hope and with my amazing family I try to keep a positive hopeful attitude and in turn keep Jordan hopeful.
Please join our team for the Cystic Foundation Great Strides walk on May 4th at Oaks Park. We would love to surround Jordan with family and friends and show him all the support he has around him.
Any donation you can make is so appreciated and helps towards finding a cure for this horrible disease that all these CF Warriors battle every day of their lives!
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.