Are you ready to help support our team as we strive to make CF stand for "Cure Found"? We would love to have all of you join us, as we enjoy a beautiful walk along the Vancouver waterfront, lunch, DJ, and a silent auction, to name a few!!
This has been such an exciting last couple of months! George had his first follow up appointment since starting Trikafta on December 30th. His PFT's went from 33% to 59% in just 3 weeks! THIS IS AMAZING!!! In the last 3 weeks, he's been able to walk a flight of stairs, carry groceries from the car to the house, sing and record his songs (this is his life) and most importantly - TAKE A DEEP BREATH without needing an inhaler to help him each time. My boy can breathe!!! People, please don't take life and breathing for granted. We have it so good compared to those that suffer. Even though this is an AMAZING update, we can't stop here! We need to keep fighting. Currently, 10% of the people that have CF aren't able to take this medication. And, all the children that are under 12 are without as well. WE NEED TO FIND A CURE FOR EVERYONE!!! Thank you to each and everyone of you that have helped us make it this far in the fight to make CF stand for "Cure Found". Let's keep fighting!!!
Thank you in advance. If you have any questions or would like additional information about the walk or Cystic Fibrosis, please feel free to contact me.
Thank You! Destiney
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.