Tavie is healthy, well, and energetic. She loves riding her bike and yelling "I CAN RIDE A PEDAL BIKE" at everyone she passes.
She's been taking Trikafta for a year via a drug study, and now that it has been approved for her age group, she'll be switching to the standard prescribed drug.
We still are wary of her frequent respiratory infections, and had to spend 10 days in the hospital for an IV antibiotic 'clean-out' this past fall.
As happy as we are for treatment advances like Trikafta, we are impatient for a cure, and treatment for all people with CF, esp. those for whom Trikafta (and similar) do not work.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.