This team is walking for Evelyn Rae! She will never fight alone! We walk for her and support her family!
Update/Note from Melanie Mom of Evelyn!
My sweet Evelyn Rae is the biggest blessing, she is such a joy to our lives.
The past 9 months have not been easy, after her diagnosis at 2 weeks old our life changed and since then I constantly learn more. I have to be careful about her being around others and careful to keep her safe from sickness since she can’t process it like normal people.
We have monthly check ups that last a few hours, she has daily treatments multiple times a day and days where her insides hurt she just cries. At one year she will get her vest to help her daily treatments.
Our CF journey is not easy and it effects our little family physically, mentally and financially…
But through it all we are learning so much and we are getting stronger because of it.
One thing I know is God chose Robert and I to be her parents and Lynden to be her big brother because He knows we are strong enough to handle this.
Evelyn is such a strong, happy girl that teaches this mama daily to be strong even in the hard moments. Evy Rae is such a bright spot in our lives and makes our family better. We are so thankful for her life and count each day we have with her a blessing!
We feel so loved and supported by our family and friends. God is so good in the ways He provides for us and we are thankful for the CF Foundation for all they do and are continuing to do to find a cure for Evelyn and others like her. Thank you from the bottom of our hearts for coming and walking with us or donating to our team. Thank you for supporting us and our girl!
-Melanie (Mom of Evelyn)
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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