It's that time again!
Are you ready to help support our team as we strive to make CF stand for "Cure Found"? Due to COVID we're changing it up a bit this year. We'll be holding a Great Rides drive-thru. Stay tuned for more details!
This has been such an exciting last couple of months! George had his first follow up appointment since starting Trikafta on December 30th. His PFT's went from 33% to 59% in just 3 weeks! THIS IS AMAZING!!! In the last 3 weeks, he's been able to walk a flight of stairs, carry groceries from the car to the house, sing and record his songs (this is his life) and most importantly - TAKE A DEEP BREATH without needing an inhaler to help him each time. My boy can breathe!!! People, please don't take life and breathing for granted. We have it so good compared to those that suffer. Even though this is an AMAZING update, we can't stop here! We need to keep fighting. Currently, 10% of the people that have CF aren't able to take this medication. And, all the children that are under 12 are without as well. WE NEED TO FIND A CURE FOR EVERYONE!!! Thank you to each and everyone of you that have helped us make it this far in the fight to make CF stand for "Cure Found". Let's keep fighting!!!
Thank you in advance. If you have any questions or would like additional information about the walk or Cystic Fibrosis, please feel free to contact me.
Thank You!
Justin
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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Are you ready to help support our team as we strive to make CF stand for "Cure Found"? Due to COVID we're changing it up a bit this year. We'll be holding a Great Rides drive-thru. Stay tuned for more details!
This has been such an exciting last couple of months! George had his first follow up appointment since starting Trikafta on December 30th. His PFT's went from 33% to 59% in just 3 weeks! THIS IS AMAZING!!! In the last 3 weeks, he's been able to walk a flight of stairs, carry groceries from the car to the house, sing and record his songs (this is his life) and most importantly - TAKE A DEEP BREATH without needing an inhaler to help him each time. My boy can breathe!!! People, please don't take life and breathing for granted. We have it so good compared to those that suffer. Even though this is an AMAZING update, we can't stop here! We need to keep fighting. Currently, 10% of the people that have CF aren't able to take this medication. And, all the children that are under 12 are without as well. WE NEED TO FIND A CURE FOR EVERYONE!!! Thank you to each and everyone of you that have helped us make it this far in the fight to make CF stand for "Cure Found". Let's keep fighting!!!
Thank you in advance. If you have any questions or would like additional information about the walk or Cystic Fibrosis, please feel free to contact me.
Thank You!
Justin
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.