There are approximately 30,000 Americans living with cystic fibrosis. Our Finley is one of these fighters.
2021 was another challenging year as we struggled to find a balance between safety and sanity. We welcome 2022 with a renewed sense of hope. We hope to return to a sense of normalcy, we hope to once again be able to safely gather with family and friends, and above all, we hope to get closer to a cure for Cystic Fibrosis.
Thankfully we are already seeing the positive effects of the groundbreaking medications made possible by your donations and continued support of the CF Foundation. Fin is one of the lucky ones as she was able to start taking Kalydeco at just one year old. Now 90% of the CF population are eligible for similar medications that target the underlying cause of CF and dont just treat the symptoms. There is still so much work to do though- we fight for a cure so Finley can have a future free of medications, treatments and the burdens of CF.
Fin is an absolute light in our life. Check out this year's video by clicking on the video link and enjoy our sweet girl's strength and spirit. This year, we are "Striding" as well as "Hiking" for a cure and your support and generosity are more important than ever. We can not thank you enough as you stand with us in our fight.
Much love, Jenny & Alden