Usually, about this time of year, you hear from us about the Cystic Fibrosis fundraising walk we do for our niece, Ella. The world is a little bit different this year, so we're doing things a little bit different. This year, we're sharing a message directly from Ella's mom, Lindsay. Please read her words and consider how you might be able to help.
~ Dena & Chuck
Well... It's been two years since we've come to you asking for your oh-so-generous support of our fundraising for the Cystic Fibrosis Foundation. It's been a time of challenge and struggle... isolation and worry... living in the midst of a global pandemic. Scary for all of us... especially terrifying for those already living with a respiratory illness. Staying six feet apart, wearing masks, using mass amounts of hand sanitizer... all those things that we've been doing for years... became a necessity for everyone. Germ and infection control has always been our jam... but over the past year, all of you have gotten to groove to it as well. It's exhausting, right? Annoying? Inconvenient? Disruptive? Nerve-racking, to navigate a world that's inherently dangerous? At some point... hopefully sooner rather than later... your lives will go back to something more normal... but we'll still need our distance, our masks, our Purell.
Aside from the ongoing COVID concerns, Ella is amazingly healthy right now... arguably healthier than she's ever been in her whole life... because of the new medication she's able to take thanks to YOUR previous donations that supported the research... but CF never stops. She still gets up early and stays up late, hooks herself to breathing treatment machines, and swallows pills by the handful. We still worry about coughs, stress about lung function, and struggle under the weight of a chronic illness that never lets us take a break.
Our challenges are different than they were 17 years ago, but they aren't any less burdensome. For her whole life, Ella will have to navigate the world with a chronic illness... juggling college and a career while managing her care... securing and maintaining health insurance to pay for the medications keeping her disease in check... balance living and having a life... always working to stay one step ahead. Will she stay strong? Will she be healthy enough? Will she be able to chase the dreams in her heart?
So many unknowns and uncertainties...
Still... after all these years.
Things are better, yes... and I wish I could tell you this fight is over... that there was a finish line and YOU helped us cross it... that we won this.
But it's not over... the finish is still out there somewhere... and we have to keep going.
So, we have to keep asking... you have no idea how much I wish we didn't have to keep asking... but...
It's Great Strides time... and here we are again... asking.
So our amazing researchers have enough money to finally find the answers.
So more people all over the world will have access to treatments that will change their lives forever.
So the life expectancy for people with CF will someday be the same as your life expectancy.
So Ella, and all the other people living with CF, will be able to explore the world and live their dreams without restrictions.
Please, take a moment out of your day to donate. I promise the CF Foundation will make sure your money goes where it's needed the most and all donations are 100% tax deductible.
Ella keenly understands the situation she's in and is truly trying to make the most out of every bit of life she has. She sees your donations as an investment in her... a vote for her... an endorsement of her life. Conversely, when we throw our plea out there and it falls flat you can see how Ella might interpret that. We can't do this without you... please help us show Ella she will never be in this alone... that you believe in her and her dreams... that you'll be there to cheer her on, however long it takes.
We will be so forever grateful.
Until there's a Cure
~ Lindsay and Ella