
Hi friends,
We are sending a single email this year to ask for support of a great chairty, the Cystic Fibrosis Foundation. The CFF supports drug research for this rare disease and has made amazing achievements in the past 13 years, extending life expectancy for those with CF.
This year, we will not be walking at Great Strides, Beckett instead will be working on a movie set and watching how things work behind the scenes.
He works to stay healthy every day by taking medicine and spending time doing airway clearance therapy. He is very patient at his quarterly checkups and when he does his PTFs, X-rays, and blood draws. Beckett is doing all he can do at his age to fight CF. Last year, he began taking Trikafta, the drug that was created from this fundraising. This drug attacks the disease on a cellular level. So far he has been responding well to the treatment and has avoided hospitalization again this year.
It is empowering to know that we can be a part of finding a cure for CF and increasing the life expectancy for everyone with CF.
We are so grateful for everyone who has supported us before and for those of you who make an annual donation. This year is just as important as years past, this year we have a chance to make a statement in the Portland Great Strides by celebrating that Beckett's Team has raised almost $500,000 in 13 years!
Every donation to Beckett's Team will be matched by the Tim and Nan Corwin Charitable Trust Foundation.
Thank you so much! Sean, Alli and Beckett
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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