Look at this guy, turned 11 in March and walking in his 12th Great Strides walk to find a cure for Cystic Fibrosis!
He loves playing with making movies, playing the piano, video games, and hanging out with his friends. Beckett has been learning remotely all year and will be going back to school for hybrid school soon. During the pandemic we switched from his small private school to our neighborhood school and Beckett is looking forward to starting at the middle school next year with his neighborhood friends.
He works to stay healthy every day by taking lots of medicine and spending hours doing airway clearance therapy. He is very patient at his quarterly checkups and brave when he does his PTFs, X-rays, and blood draws. Beckett is doing all he can do at his age to fight CF. Last year he began taking Symdeko, the drug we have been fundraising for. This drug attacks the disease on a cellular level. So far he has been responding well to the treatment and has avoided hospitalization again this year.
We are always trying to stay in front of Beckett's health. It takes monthly, weekly, daily and hourly discipline. Beckett's continued health is a fantastic reward for our efforts but there is more we can do, like this annual fundraising for medical research. It is empowering to know that we can be a part of finding a cure for CF and increasing the life expectancy for everyone with CF.
We are so grateful for everyone who has supported us once before and for those of you who make an annual donation. This year is just as important as years past, this year we have a chance to make a statement in the Portland Great Strides by celebrating that our national team has raised $400,000 in 10 years!
Every donation to Beckett's Team will be matched by the Tim and Nan Corwin Charitable Trust Foundation.
Thank you so much, Sean, Alli and Beckett