Hi Family and Friends,
As many of you know Jordan was diagnosed with Cystic Fibrosis on May 26, 2016. In addition, Jordan has CF related early stage liver disease. While we were thankful to finally know what had been wrong with Jordan it has changed all of our lives forever. It is a daily battle with two hours a treatments a day and 25-30 pills per day. Jordan is on a 5,000 calorie diet per day and we are trying to feed him enough before June so he does not have to get a feeding tube so pray for him that he keeps gaining weight! Jordan has good days and bad days. He is a teenager and the struggles that come along with his age but, to put this diagnoses on top of teens years has been challenging. Most days Jordan is positive and does not let his disease take over his life however, he is frustrated and angry (mostly at Mom for enforcing his treatments) and I cannot blame him. He has been dealt a very tough battle in his life and keeping a positive attitude is a daily struggle. I will not give up hope and with my amazing family I try to keep a positive hopeful attitude and in turn keep Jordan hopeful.
Please join our team for the Cystic Foundation Great Strides walk on May 4th at Oaks Park. We would love to surround Jordan with family and friends and show him all the support he has around him.
Any donation you can make is so appreciated and helps towards finding a cure for this horrible disease that all these CF Warriors battle every day of their lives!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.