There are approximately 30,000 Americans living with cystic fibrosis (CF). They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and for our friend Will and hope you will support me in my efforts. Will was diagnosed with CF in October 2015 at age 9 1/2. In the first year he had to spend 40 days hospitalized at Doernbecher Children's Hospital. In following years, with proper medications and theraphies he spent 0 days hospitalized! Will started a new drug in October 2017 and in only one month had seen the largest increase in PFT numbers and weight gain. All in one month! All because of a new drug made possible with continued research and financial support from people like you! Will started a new drug, Trikafta, in late December 2019 that has shown improvements in his lung health in the year that he has been taking it. He has also put on weight, doesn't have as many daily breathing treatments and is finally in the normal range for chloride levels! This new drug can help 90% of those with Cystic Fibrosis.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides Rides (Covid friendly car parade) fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
You can also follow Will's fundraisers and health updates at https://www.facebook.com/willswarriorswa
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.