April 23, 2023
Dear Family & Friends,
Our grandson Beckett is 13 years old!
We are copying Alli and Sean's letter here because they explain clearly what Beckett's daily regimen requires. We have great admiration for the positive and fun home life they create for him.
"...The real Beckett isn't all about CF; that's just one piece of his life."
"He works to stay healthy every day by taking medicine and spending an hour 2x per day doing airway clearance therapy. He is very patient at his quarterly checkups and when he does his PTFs, X-rays, and blood draws. Beckett is doing all he can do at his age to fight CF. Last year, he began taking Trikafta, the drug that was created from this fundraising. This drug attacks the disease on a cellular level. So far he has been responding well to the treatment and has avoided hospitalization again this year. No Covid!
It is empowering to know that we can be a part of finding a cure for CF and increasing the life expectancy for everyone with CF."
We are so grateful for everyone who has supported us before and for those of you who make an annual donation. This year is just as important as years past, we have a chance to make a statement in the Portland Great Strides by celebrating that Beckett's Team has raised over $500,000 in 12 years!
Thank you from the bottom of our hearts for joining Beckett's Team,
Katharine & Goody
P.S. Click yellow "Donate" button to make a contribution only.
Click yellow "Join" button to register to walk.
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