April 12, 2021
Dear Family & Friends,
Our grandson Beckett is 11 years old!
We are copying Alli and Sean's letter here because they explain clearly what Beckett's daily regimen requires. We have great admiration for the positive and fun home life they create for him. "...the real Beckett isn't all about CF—that's just one piece of his life."
"He loves playing with making movies, playing the piano, playing video games and hanging out with his buddies. Beckett has been learning remotely all year and wi be going back to school soon. During the pandemic we switched from his small private school to our neighborhood school and Beckett is excited to start middle school with his neighborhood friends.
He works to stay healthy every day by taking lots of medicine and spending hours doing airway clearance therapy. He is very patient at his quarterly checkups and brave when he does his PTFs, X-rays, and blood draws. Beckett is doing all he can do at his age to fight CF. Last year he began taking Symdeko, the drug we have been fundraising for. This drug attacks the disease on a cellular level. So far he has been responding well to the treatment and has avoided hospitalization again this year.
We are always trying to stay in front of Beckett's health. It takes monthly, weekly, daily and hourly discipline. Beckett's continued health is a fantastic reward for our efforts but there is more we can do, like this annual fundraising for medical research. It is empowering to know that we can be a part of finding a cure for CF and increasing the life expectancy for everyone with CF.
We are so grateful for everyone who has supported us once before and for those of you who make an annual donation. This year is just as important as years past, this year we have a chance to make a statement in the Portland Great Strides by celebrating that our national team has raised $400,000 in 10 years!
Every donation to Beckett's Team will be matched by the Tim and Nan Corwin Charitable Trust Foundation."
Thank you from the bottom of our hearts for joining Beckett's Team,
Katharine & Goody