Gordon Johnson

Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). 

An additional ten million more — are carriers of the defective CF gene, but do not have the disease. To have CF, a person must inherit two copies of the defective CF gene — one copy from each parent.

CF patients are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. One of them is my son, Levi.  I walk for Levi and all those with CF, and hope you will support me in my efforts.

CF is caused by mutations in the gene that produces the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This protein is responsible for regulating the flow of salt and fluids in and out of the cells in different parts of the body.

In the 1950s, few children with CF lived to attend elementary school.  In 2015, for the first time, over half the CF population is over 18 years of age.  Currently, the median predicted age of survival is in the early 40s – a mark of the incredible results made possible by the research funded by donations to the Foundation.  

Real progress has been made in the search for a cure, but the lives of people with CF continue to be cut far too short. There still is no cure for this devastating disease.

By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support my fundraising by making a donation to my Great Strides fundraising campaign today!  Or better, join Levi’s Team and make a donation to your own Great Strides fundraising campaign!

Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.

Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100% tax deductible.