Benjamin sets his own limits
Our Great Strides Story
5 years ago we joined the Cystic Fibrosis Family when our oldest child, Benjamin, was diagnosed with CF. In the moment, we thought our son's life had been forever changed, little did we know that our son would live his life to the fullest, regardless of being a host of Cystic Fibrosis. Awareness has been important to us from day 1 and continues to be. We also knew that we would provide Benjamin with a life similar to what he would have had if he wasn't diagnosed with CF.
Benjamin thrives in life and in school and is always looking for the next adventure. We are thrilled with how much Benjamin had thrived in life.
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Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.