Hello family and friends! A special event dear to my heart is drawing near!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them. I could go on about how much cystic fibrosis has affected my life and others around me, but if you know me you pretty much already know my story! If you don't, I would be more than happy to sit down or message you at any time and chat.
I am walking for myself, my donor, as well as their family. Passing 40 years old and walking on behalf of this cause is something I never thought or dreamed I would be able to do, even at age 30. My lungs have been great for 8 years and this past winter I had my first post transplant lung scare. It ended up being because of acid reflux(thank God!) so I need to be more aware of things that could cause it. Having that experience really takes me back and reminds me of how far I've come since both pre and post transplant. Thinking about it is pretty amazing. Makes it kind of incredible that we've been walking with Amanda's army for 6 years!! Without the amazing generous support of my donor and their family I would not be here today. Getting through transplant and recovery was hell, but after recovery, what a difference the transplant has made! It is mind boggling to me at times just how much my life has changed as a result! Sure, I have had challenging times over the last 8 years but, just having the ability to breathe is amazing!
The medical advancements they have made are astonishing! That's one reason I walk for the Cystic Fibrosis Foundation: besides all the advancements made during my lifetime, they also help so much with medication, treatments, and support for families. It’s awesome to see the news letters come in every month with what is new and being done!
I invite you to support Amanda's army! The Portland Great Strides Walk takes place on May 18th!
By supporting my fundraising goal, you have an opportunity to be part of ending this disease in your lifetime! Please consider joining us to help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.