We've Come a Long Way, Baby
Sixteen years ago when our baby was born six weeks early, Jason and I had barely heard of cystic fibrosis. Within a month, our new baby Toby was diagnosed and we have been on the CF roller coaster ever since. We have had great days and rough patches, hospitalizations, and new medications. The Cystic Fibrosis Foundation has been with us every step and in those sixteen years, Toby’s prospects for a healthy life have increased exponentially.
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues. Even with the new, miracle medications that have been produced in Toby’s lifetime, there are complications. CF is part of our lives every day.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.