Rebecca was born in 2014, at our local hospital which then sent her to DHMC. At DHMC, just a handful of hours old she had her first surgery to correct her small intestine that had twisted around itself and partially died. She had a deflated lung which resolved over her two week stay in the NICU. For the past 9 years she has been a fighter, and with the help of great strides medications like orkambi and trikafta have been available to her. While there still is no cure for CF we continue to fight until it stands for CURE FOUND.
Dum spiro spero.
(While I breathe, I Hope)
Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
Our Great Strides Story
Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.