Hearts full of Aces

Hello!

First I want to thank you SO much for your continued support. New advances in treatments come every year thanks to your contributions.

When we found out we were having a baby we were excited, and nervous, as most parents are. Little did we know the adventure we'd be on 9 months later! A week after she was born we found out that our sweet little girl, Acadia (aka Ace) has Cystic Fibrosis. It was caught through the heel prick screening that the state of Maine does for all new babies.

Since then we have learned so much about the disorder, and what it will mean for Ace and our family. We are so lucky and thankful to have the support of our family and friends, as well as the amazing medical staff at Intermed and Maine Health Partners. We know Ace will have all the care and support she needs to have a long, healthy, brilliant life!

Acadia has been very healthy this year and has had no hospitalizations (again!! YES!)! She gets excited to do her Vest treatment and tolerates (sometimes haha) her nebulizer treatment. She is growing beautifully and is in the 85th percentile! Ace loves cats, coloring and Daniel Tigers Neighborhood. I can't wait to see what this fundraising year holds, and I hope we will see you in Bar Harbor this fall!

We are participating in this walk specifically because it is the home of her namesake Acadia National Park. We walk to raise awareness and hope. The money raised will not go directly to Acadia, but to the CF foundation, to help ALL those living with CF every day. 

I believe Ace will see significant advances in treatment in her lifetime, and your donation will make it happen! 

Thank you for reading our story, and we appreciate whatever donation you can make! 

Xoxo,

Jona, Tony and Acadia