Nick and Keegan, now 23 and 21 were diagnosed with cystic fibrosis fairly late at ages 8 and 6. It of course came as quite a shock and our lives have all changed drastically since then. Up until 2 years ago their daily routine included more than 2 hours of treatments, more than 30 pills a day and many clinic and hospital visits to maintain their health. Trikafta has been a game changer! This drug would not have been possible without the support from the CF Foundation and donors like all of you. The truth is there is still no cure for CF and that is terrifying, but there is reason for hope. The CF Foundation is working hard to fund research and has made some great investments that are starting to show promise.
Keegan is off to RI for his final year of college and Nick never left after graduation. Both have been working hard to transition health care providers manage their own care, order medicine, etc. it's a lot to handle as a young adult! Now let's hope the worst of the COVID-19 pandemic is over or alt least manageable to live with!
Every dollar raised gives us more reason for hope that a cure is coming or at least therapies that will extend lives and make life more livable! Our family is so appreciative of all that you can to to help us fight this disease. Join our team and help add tomorrows!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.