My name is Katie Leighton Ceranic, I am 32 years old and I have Cystic Fibrosis, Cystic Fibrosis related Diabetes as well as many other complications related to CF. I was diagnosed at 8 months old. My family and I have been running the Bar Harbor Walk-a-thon for 33 years. I am a special education teacher at Trenton Elementary School in Trenton, Maine and I completed my masters degree in special education in May 2020. I have been married to my best friend, Theron for almost four years and we have an adorable cat, Ember and a sweet puppy, Ripley.
This year has been a difficult year with sinus infections and I have had to deal with many rounds of antibiotics, oral and by IV. I just recently had my 14 sinus surgery in August. There were many complcations with the surgery including 30+ nasal polyps that needed to be removed, sinus cavities filled to the brim with mucus and my septum needed to be reconstructed. The nasal polyps were scrapped from the base of my brain, my sinus cavities as well as around my eyes and between my eyes. A new medication came out last year to help people with CF live a more healthy, long life. It is called Trikafta. Thanks to your donations, new therapies and medications are being created to help those who suffer from CF be able to breathe better and combat the symptoms and diagnoses that come along with CF. This year the walk will be virtual because of COVID-19, but families can walk around their own towns to help raise money. My family and I will be walking in Bar Harbor away from the crowds to prevent the spread of infection. Thank you for your donations and your support.
Katie, Phyllis, Woody, Kasey & Theron
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.