For Angelina's Birthday this year she is donating her birthday money to the Cystic Fibrosis Foundation and walking in Portland's CF walk on May 20th. A friend of ours, Franky, has cystic fibrosis, he is 2 and is totally adorable. We will walk for him and all of the other people in the world who have this disease.
Thanks all and please donate whatever you can!!
Here is some background on cystic fibrosis...
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis a life free from the burden of this disease and we will not leave anyone behind.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.