The boy himself!
Lex is 5 years old and living with Cystic Fibrosis. Thanks to the amazing work of the Cystic Fibrosis foundation and their research he is able to take a medication that makes it so you would not even know he is living with Cystic Fibrosis.
He is just a boy that loves to go to school and playing with his brother. He has the biggest imagination and loves to build worlds in minecraft. If you talk with him he will tell you amazing stories and jokes hoping to get you to laugh. Help us to protect that beautiful smile that lights up our world.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.