Hi Friends! As most of you know, every year I raise money for a cause that is very important to me. This year is our 14th annual walk to raise money for Cystic Fibrosis. Please consider donating a comfortable amount!
Update from Mom & Dad:
CF is caused by mutations in the cystic fibrosis transmembrane conductance regulator (CFTR). Modulators are one of the newest treatments they partially restore activity of the protein, which maintains the proper balance of salt and fluids at the surface of the lungs and other organs.
This year has been full of lifes milestones, Hazel entering highschool and Edgar being a licensed driver. We have the CFF to thank for their hard work pushing to advance treatments so patients with CF are able to live a high quality life. The kids still have the occasional lung infection, Hazel had another bout of Covid and Edgar Influenza B but all and all a healthy year.
Modulator therapy is not a cure and other CF families have not had the same improvements. We continue to walk and support our CF community. Please consider walking with us or any donation you are able to make. Thank You Team We Care 4 Leclerc 15 years strong!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.