I will be participating in the Great Strides walk in Bar Harbor this weekend. I walk to support our granddaughter Acadia who has CF.
Acadia has a daily regiment of airway clearance with vest therapy, nebulizer treatments, pancreatic enzymes which help the body absorb necessary nutrients, and vitamins.
Acadia was old enough this year to start a new medication, Trikafta which does not treat the symptoms but works at the cellular level. It helps the cells do what they are supposed to do. This medication was made possible through research funded by the many CF fundraisers, including the Great Strides walk.
Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.