First I want to thank you SO much for your continued support. 2020 was a tough year for us all, so the fact you're even here, perhaps considering donating to our cause, is SO amazing!
When we found out we were having a baby we were excited, and nervous, as most parents are. Little did we know the adventure we'd be on 9 months later! A week after she was born we found out that our sweet little girl, Acadia (aka Ace) has Cystic Fibrosis. It was caught through the heel prick screening that the state of Maine does for all new babies.
Since then we have learned so much about the disorder, and what it will mean for Ace and our family. We are so lucky and thankful to have the support of our family and friends, as well as the amazing medical staff at Intermed and Maine Health Partners. We know Ace will have all the care and support she needs to have a long, healthy, brilliant life!
Acadia is still so very healthy and has had no hospitalizations (again!! YES!)! We purchased out first home and moved to Windham this year. Ace is loving all the space we have, checking out the chickens, and visiting all the playgrounds in the area. She is NON-STOP! We are looking forward to her starting Pre-K in the fall, where we know she will make instant friends.
We are participating in this walk specifically because it is the home of her namesake Acadia National Park. We walk to raise awareness and hope. The money raised will not go directly to Acadia, but to the CF foundation, to help ALL those living with CF every day.
I believe Ace will see significant advances in treatment in her lifetime, (If you havent heard of Trikafta, look it up! It will hopefully change how Acadia lives with her CF!!) and your donation will make it happen!
Thank you for reading our story, and we appreciate whatever donation you can make!
Jona, Tony and Acadia
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.