This is our eighth year participating in the Lebanon Great Strides walk and we're excited to be back!
Avery started 3rd grade this year and still loves school. She loves her teacher and all her friends fiercely. She also really enjoys being a big sister to Sadie. If you know Avery, you know she's incredibly resilient, feisty and brave and we are so proud of her! She still does her daily therapies like a champ, takes her medications with no complaints and is incredibly happy and active. She is a fighter and we know that attitude will carry though her life.
Avery has been on the new CF drug, Trikafta for about two and a half years and what a difference we are seeing. Her colds haven't been lasting as long, she hasn't needed antibiotics in a while but the side effects of the drug are something we are starting to have to deal with. We hope with fundraisers like this, more progress can be made to develop medications with fewer side effects and eventually a cure.
Avery is still very lucky to have been born at a time when there is so much progress being made in cystic fibrosis. None of this would have been possible if it weren't for the CF Foundation and fundraisers like Great Strides. This isn't a fight to be fought alone. Avery and all CF fighters need your help. As we've seen, real progress is being made in front of our eyes in the search for a cure, but the lives of people with CF are still cut FAR too short. There still is no cure for this devastating disease and there is still 10% of the CF population who can't benefit from Trikafta. By walking we are helping add tomorrows to the lives of people living with CF. Will you join me? Support us by joining our team and/or making a donation to our Great Strides fundraising campaign today!
-Avery's Allies
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.