Hi friends!! It’s that time of year again when I ask all of you to help me continue to fight for a cure for Cystic Fibrosis. As you know, this is an organization that is near and dear to our hearts because of our friend and neighbor, Reid. Luckily, with the help of all of you, Reid is continuing to lead a healthy, happy teenage life. The drug that Reid was able to start taking at the age of 12, is continuing to work it’s magic and keep Reid living a full life of a teenage boy. For a full update on Reid, read the following from Reid’s mother and my dear friend.
Let’s continue our efforts to make Cystic Fibrosis a curable disease for Reid and the many others who suffer from it!!
Thank you all!! XOXO
A Message from Reid's Mom, Dana:
Life is so different in the best ways. I honestly sometimes forget that Reid has CF. How is it possible that this big strong teenager is the same kid I laid next to in a hospital bed with 60% lung function just a few years ago? The luxury to forget about CF is one I never thought we would get and I still pinch myself thinking about it.
We never would have arrived here without the amazing fundraising Reid's Crew has been a part of over the past 16 years. We won't get as far as we need to go unless we continue. If Reid were to somehow lose access to this medication everything would come back, all of his symptoms would return. We need to continue to fund the research so that a more permanent fix, a cure, is found.
You are all the most incredible people; I get nervous every year to ask for your help. You have done so much to support us on this journey and I am grateful beyond words. The trajectory of Reid's life is changed and drastically improved thanks to people like you who cared enough to help. Seeing him flourish these past few years has been worth every awkward email I've sent or ask I've made or fear I've had to overcome in the fundraising process. Reid really is the best person, he is sweet and kind and loving, and he is so worthy of this effort and this fight. I hope you can join Reid's Crew again this year and inch us closer and closer to that finish line.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.