Hey everyone, welcome to Paysons Page for Reid's Crew!
I've got a big goal here...
I'd like to help get a cure for CF. That would be amazing, & let me tell you why:
I have a little friend- his name is Reid. He is pretty cool and works harder than any of us every day, just to breathe. It's something we all take for granted, unless you are someone like Reid. Want to hear some pretty interesting facts about Reid? He's 11 1/2 years old. Since his life expectancy is only 38, he's lived just over a 1/3rd of his projected life - and that is NOT okay! He loves NERF, Legos, Hero Mashers, The Food Network, yogurt WITH granola, setting pogo stick records, the card game Millie Bornes (when he's winning), and the occasional country song.
Reid does not like most vegetables, keeping socks on, cake (frosting is still okay), showers/baths (really anything personal hygiene related), or homework (can you blame him??).
Reid was born with the genetic disease cystic fibrosis. It is a fatal disease that affects mainly the respiratory and pancreatic systems. At this time there is still no cure and again, read this loud and clear, his life expectancy is only 38 years.
Reid spends 1-2 hours a day inhaling nubulized medicine while doing chest physical therapy and has to take pills every single time he eats. This is on top of many other medications that treat related symptoms. Two years ago Reid was in the hospital for a week due to his lung function being down to the 50th percentile, which his is normally above 100%. Once it was back up to 75% Reid was able to go home while being on an IV for another 2 weeks. But as strong as he is, Reid never complained once. This year Reid has been hospitalized more then ever. He is now comfortable with being pricked for medications. No kid should ever be hospitalized for a day never mind a week or even a month. And no kid should ever feel comfortable being pricked.
Although the family is grateful for these treatments what we really need is a CURE.
With everything going on in the world today, life has been hard for many of us. Being immune deficient I personally am affected. Social distancing has taken a toll on all of us each and every day. But regardless of how the impact has been on all of us, it's those who are sick like my friend Reid, who have it the hardest.
Reid was born with Cystic Fibrosis. I think Reid's mom put it best as she described how his life is now forever changed. As social distancing comes to a halt for the rest of us, Reid will continue to stay 6 feet away from all others.
I'm asking for your help to find a cure. I know it's a difficult time but I hope you can find it in your heart to help CFers breathe a little easier.
Both my brother and I carry that terrible CF gene. And although there have been medical break throughs, with great planning and a lot of money, we can have healthier children. But wouldn't it be nice to not have to worry about that?
It's simple, a cure is the only thing that can truly stop the progression of this disease. So, can you give me a hand?