Payson Mooso

Hey everyone, welcome to Paysons Page for Reid's Crew!

As I am sure you all know, I have a friend named Reid. He is a pretty cool (not so little anymore) guy and works harder than any of us every day just to breathe. It’s something we all take for granted, unless you are someone like Reid. 

It absolutely devastates me that this will be the first year I cannot walk for Reid. BUT just because I cannot attend the walk in person, does not mean I can't support virtually! 

Reid is now 15 1/2 years old; which means we’ve been walking for Reid’s Crew for 16 years! Yes, this team started when Dana and Tim found out during pregnancy that Reid has Cystic Fibrosis. 

Cystic Fibrosis is a fatal disease that affects mainly the respiratory and pancreatic systems. At this time there is still no cure.

Until recently, Reid’s life expectancy was only 38 - and that is NOT okay! Thankfully, after Reid turned 12, he was able to start a triple combo modulator treatment called “Trikafta”. After taking his first dose, within hours the medication was productive in moving mucus out of his system. Since starting Trikafta, Reid has been on fewer antibiotics, and has had fewer doctor visits! He is living a life that he never has before! Reid’s new life expectancy is 50 years old! 

Three years later and Trikafta is still working great! Reid is playing various sports, has increased energy, increased stamina, and is fighting off infections! Trikafta has allowed Reid to have a broader lifestyle that his family never knew was possible with CF. REID IS LIVING A MOSTLY NORMAL LIFE! 

However, Trikafta is NOT a cure! While Reid is responding well, not all patients do. And while Reid’s life expectancy has increased, it is still not enough. 

Although the family is grateful for these treatments, what we really need is a CURE. 

I'm asking for your help to find a cure. I hope you can find it in your heart to help CFers breathe a little easier.

Both my brother and I carry that terrible CF gene. And although there have been medical breakthroughs, with great planning and a lot of money, we can have healthier children. But wouldn't it be nice to not have to worry about that?

It's simple, a cure is the only thing that can truly stop the progression of this disease. So, can you give me a hand?

Thank you, and happy breathing!