Welcome to Hannah's Helpers 2021,
What a crazy year 2020 was! It was strange not being together for the walk, but we're so happy that our family was healthy enough to get out there and walk and had you guys supporting us!
Great Strides will be virtual again this year and takes place on Saturday, May 15th ... we are hoping that you will donate to Hannah's Helpers and be sure to grab your sneakers, sport a Hannah's Helpers, Vigeant's Valor or purple shirt and get your walk on whereever you are :) It's hard to believe that this will be our 15th walk, where has the time gone?? When we started on this journey, Hannah was just a baby and now she is a freshman in high school :) COVID has definitely presented challenges but the best news is that they've found that children with CF are handling it better than they anticipated. Definitely a sigh of relief here!
Hannah has had a great year health wise, (minus a little hiccup with the stomach that we are hopeful is corrected now but keeping an eye on), she fought COVID and kicked it to the curb! We are so grateful for her arsenal of meds and treatments, we are positive they're the reason she's so healthy. She also has an exciting year ahead... she is serving as one of NH's Great Strides 2021 Ambassadors, has joined the NH CF Patient and Family Advisory Board and is part of a study to see just how well she is doing on Trikafta! It's so great to see her taking full responsibility for her health, (she is in charge of meds/treatments), and being such a strong advocate for herself and those with CF.
To keep her healthy, she keeps on top of her daily meds which includes: 18-25 enzymes, 2 CF multi vitamins, vitamin D 2x a day, an antibiotic every Mon., Wed. & Fri. and Trikafta which consists of 3 pills. Her daily therapies include an haler, nebulizers and chest physical therapy. The inhaler is done 2x a day, the nebulizer is now once a day or 4x a day when she's on Cayston, (which is 28 days on and 28 days off until she can go one year without culturing pseudamonas), chest PT is twice a day 20 mins each time, (but when she gets a cold, that is bumped to 3-4x a day and an antibiotic will be added). That's waking up 35 minutes earlier on school days to get all her treatments in and sometimes having to leave someplace early to get her treatments in before bed. It's a lot but she's a champ and if her study goes well, we may be able to cut this down a bit! Fingers crossed!
Tremendous progress is being made in the CF world but there is still no cure so we continue to walk, educate and raise money until there is! The money we raise goes towards the improved medical treatment and care of all of those with CF. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families and we are happy and proud to be a part of it. With all of your help, we have raised OVER $113,000 since we began this fight! That number just blows me away ... thank you once again from the bottom of our hearts for ALL the love and support you have shown to our family. Hannah still has a long way to go and a lot of fight left in her so we hope you'll continue to stand with her and us as we push on until a cure is found! We truly appreciate each and every one of you and are humbled by any and all donations, blessings and well wishesl!
The Vigeant Family