Laurie Eddy

Hi everyone, this is Kelly and it’s that time of year again! Team Eddy is getting ready for Burlington Great Strides Walk for Cystic Fibrosis.

Most of you know that my sister and I were diagnosed with CF in 2002. For those of you that don’t know, CF is a genetic disease that causes thick, sticky mucus to form in our bodies, and affects our lungs, sinuses, and digestive system. Maureen and I are lucky to say that our lives are pretty normal, except for the daily airway clearance, medications, and quarterly medical appointments. We have had a great year, health-wise, due in large part to Trikafta, a groundbreaking drug that targets the underlying cause of symptoms of CF, made possible through fundraising events like the Walk. But there is no cure for CF, and it is a progressive disease – symptoms get worse as we get older. And there are many others with rare mutations who are still waiting for effective treatments. We rely on contributions like yours to fund research and development, and safeguard our futures.

We’d love to have you join our team and walk with us. There will be music, food, and good times with friends, family, and community. If you can’t make it, please consider making a donation to the Cystic Fibrosis Foundation to support the talented scientists working on new drugs and therapies to make living with CF easier. Use the link at the bottom of the page and follow the prompts to make a donation. Any amount that you can contribute is greatly appreciated. So, thank you, and please know that your support matters! Our family appreciates it more than we can express.