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Earlier this year, our Colorado family participated in the Climb for a Cure in order to boycott cystic fibrosis.
Our Texas family will be participating in the annual Dallas Cycle for a Cure in remembrance of Maddie Dallas, who sadly passed away at the age of 14 from complications associated with Cystic Fibrosis. We would also like to raise money and support the Cystic Fibrosis Foundation (CFF) in its search of a cure for my niece, Sloan Scott, who, shortly before Maddie’s passing, was diagnosed with Cystic Fibrosis as well.
Thanks largely to the CFF and the donations they receive, Sloan has grown up as a relatively normal kid. With the support of our friends and family, we feel confident she’ll grow up to have a long, healthy life.
To those who can, we would love for you to join us in Dallas on October 1st to ride. If you are interested in participating but are not in the Dallas area, there is also a virtual cyclist option.
Why do we believe this works?
Sloan faced and faces completely different prospects, given the advances in science and medicine that occurred between Maddie’s life and hers, thanks to the work of the Cystic Fibrosis Foundation. It is because of this we have hope that Sloan will be part of the first generation to be cured of a genetic disease.
In the past 60 years, the CFF has helped raise the predicted life expectancy from five years to 40 years. Almost every drug and treatment Sloan is prescribed —including the nearly 30 pills a day she takes to process food, and 1-2 hours of daily breathing treatments to keep her lungs healthy—were made possible by dollars previously contributed by you and others. As is the drug she will one day take to restore some activity to the underlying broken protein that causes the issues. And one day—a real cure.
Please help us make CF stand for “Cure Found” !
More from the CFF
Join our team and help us get one step closer to a cure for Cystic Fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the CFF continues to lead the way in the fight against Cystic Fibrosis, fueling extraordinary medical and scientific progress. The life expectancy of someone born with Cystic Fibrosis has doubled in the last 30 years. Despite this progress, many people with Cystic Fibrosis do not benefit from existing therapies, either because their disease is too advanced, or because their specific genetic mutations would not respond. These are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who are struggling every day in the face of this devastating disease.
We participate in CF Cycle for Life for these people.
Will you join us?
CF Cycle for Life is a unique event that empowers cyclists across the nation to take action and help in the fight against Cystic Fibrosis. Take your ride to the next level by joining CF Cycle for Life and help us realize our shared dream – a cure for every person living with CF!