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My CF Cycle for Life Story

If you’ve met Vivien, you know she’s one of the greats. She’s my daughter so I am likely a tad biased on all matters related to this 12 year old. But I have to say - this kid is remarkable. She’s the best mix of resilience, spunk, natural talent, and explorer. She’s experienced rough side effects in the past couple of years from Trikafta, the long awaited CF med, and it is not a match for her despite the expectation it was suitable for her genetics. There’s much work to be done to keep Vivien and others like her in top condition to ensure long fulfilling lives ahead. Vivien and I will embark on our 2nd annual cycle for life bike trip next Saturday Sept 30th. We would love your support! 

You can support me!

You have an opportunity in your lifetime to be part of ending Cystic Fibrosis. Please consider sponsoring us to help make medical history. Donations are tax deductible!