Welcome to my Page
My CF Cycle for Life Story
In grammar school (1968) I was made aware of CF when two brothers in my class told me about having to pound their sister's back to help with her breathing. I thought this was barbaric. Fast forward 50+ years and I see their sister, a true champion, going strong at CFF events.
15 years ago, my nephew Bob and his wife (Maria) welcomed their first child into this world. After some difficult times, they discovered their son, Emmett, was born with CF. Despite many challenges he is a thriving high schooler today.
Just a year later, my nephew Matthew and his wife (Kellene) welcomed their first child, Brady. From the outset Brady's struggle was uphill all the way, as he too was born with CF requiring immediate surgical intervention. Brady has been an amazing self-advocate working to Kick CF's Butt since the beginning and he is doing great today.
Brady is thriving today because of new drug therapies made possible through the generous donations of people like you. Emmett is doing well too, but his form of CF is not responding to the latest drugs. So we need to keep the fight going.
Supporting Research... Extending Lives!
When my friends' sister was born, the life expectancy for a child with CF was 12 - 15 years. By the time Emmett and Brady were born that number had climbed to 35 years. Today, thanks to pharmaceutical breakthroughs, the life expectancy for many children with CF is up to 50 years, there are still others who are left behind because the newest drug therapies are not effective on their form of CF. We can't take our foot off the gas. More research needs to be done and more advocacy programs need to push to make that happen. The way to get there is by supporting the Cystic Fibrosis Foundation through your generous contribution.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I cycle for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Let's Kick CFs Butt!