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On September 23rd, my wife Kim and I will be riding our bikes twenty-five miles as a part of the Cystic Fibrosis Foundation's Cycle for Life event. Cystic Fibrosis became part of our lives after our son, David Asher (Dash for short), was diagnosed with this genetic disorder through the newborn screen.
Cystic fibrosis is a life-threatening genetic disease that affects approximately 30,000 children and adults in the United States. A defective gene causes the body to produce abnormally thick, sticky mucus. This abnormal mucus leads to chronic and life-threatening lung infections, impairs digestion, as well as a host of other symptoms.
Dash is a happy, spunky, sweet 8 year old boy. He loves climbing trees at the nearby parks and reading books about reptiles and the human body. He loves playing Minecraft, StarDew Valley and Mario Odyssey with his brother, William.
His therapies have become more intense, but he handles them with bravery. Each day he wears a vest that shakes his chest to loosen anything that has built up in his lungs, nebulizes a medicine to help his breathing and takes a myriad of pills to aid digestion and vitamin absorption. These things are not easy for a 8 year old to understand, but Dash already seems to know that he needs to fight to win this marathon. As his family, we will stand with him and fight for tomorrows.
Please stand with us.